October is Dwarfism Awareness Month
Dwarfism Awareness Month is a special month for the King Family! Our nephew Caedmon has Achondroplasia which is a form of dwarfism. Our nephew gives us a different perspective on life and brings us so much joy! We love his spunky personality and his “game face” and we couldn’t imagine life without him. His parents (My sister in law and her husband) do a fantastic job of raising him and we couldn’t be more honored to be a part of his life and family.
We look forward to watching Caedmon grow and develop as he lives this life that God has prepared him for. We know he is going to be used mightily for His Kingdom!
My sister in law gets lots of questions when she is out and about with Caedmon and I thought it would be beneficial to share some of the questions she receives with you all. These are all taken from the Little People of America Website. I encourage you to check it out and support #TeamCaed this month and wear the color green for Dwarfism Awareness!
Frequently Asked Questions
Q: What is the definition of dwarfism?
A: Little People of America (LPA) defines dwarfism as a medical or genetic condition that usually results in an adult height of 4’10” or shorter, among both men and women, although in some cases a person with a dwarfing condition may be slightly taller than that.The average height of an adult with dwarfism is 4’0, but typical heights range from 2’8 to 4’8.
Q: Can average-size people become the parents of children with dwarfism?
A: Yes, more than 80% of children with dwarfism have average-height parents and siblings. LPA is deeply concerned that as it becomes increasingly common to diagnose genetic conditions in utero, including dwarfism, prospective parents will find it difficult to obtain the data they need to make an informed decision as to whether to continue with the pregnancy. Genetic testing carries with it frightening implications for a whole range of issues, including a person’s right to obtain medical and other forms of insurance. LPA believes strongly that prospective parents who become familiar with the full, productive lives led by little people will not likely choose termination.
Q: What are the most common types of dwarfism?
A: The most frequently diagnosed cause of short stature is achondroplasia, a genetic condition that results in disproportionately short arms and legs. The average height of adults with achondroplasia is 4’0″. Other relatively common genetic conditions that result in disproportionate short stature includespondyloepiphyseal dysplasia congenita (SEDc), diastrophic dysplasia, pseudoachondroplasia, hypochondroplasia, and osteogenesis imperfecta (OI). As one might expect from their names, pseudoachondroplasia and hypochondroplasia are conditions that have been confused with achondroplasia; diastrophic dysplasia occasionally is, too. OI is characterized by fragile bones that fracture easily.
According to information compiled by the Greenberg Center at Johns Hopkins Medical Center and by the late Lee Kitchens, a past president of LPA, the frequency of occurrence of the most common types of dwarfism is as follows:
1. Achondroplasia (one per 26,000 to 40,000 births)
2. SEDc (one per 95,000 births
3. Diastrophic dysplasia (one per 110,000 births)
Proportionate dwarfism — short-stature conditions that result in the arms, legs, trunk, and head being in the same proportion (relative size to one another) as in an average-size person — is often the result of a hormonal deficiency, and may be treated medically, resulting in an average or near average height. There are not such treatments available for people with disproportionate short stature.
Although achondroplasia accounts for perhaps 70 percent of all cases of dwarfism, there are over 200 diagnosed types, and there are some individuals with dwarfism who never receive a definitive diagnosis and/or have a condition that is unique to themselves or their family.
We are all created in Gods image!